I felt increasingly tired and achy, and several times at night I’d wake up in a sweat, then get the chills. I’ve tried to be really careful about ticks—and I’d managed to avoid tick-borne illnesses for eleven years, after missing my daughter’s college graduation with Lyme and ehrlichiosis—but my symptoms felt depressingly familiar. My doctor agreed, and put me on Doxycycline, the preferred Lyme antibiotic, without waiting for the results of the blood test.
People often say that once you’ve had Lyme you’ll always test positive, but that’s not true. Lyme antibodies can remain in the blood for months after treatment, and in some cases for a few years. But they eventually disappear. And, in fact, when my test results came back they were negative for both Lyme and ehrlichiosis. But they were positive for babesiosis, which the New York Department of Health describes as “a rare, severe and sometimes fatal tick-borne disease.” WTF!
Babesiosis is caused by a parasite that attacks red blood cells, and is therefore similar to malaria. My friend Ed was hospitalized with it a couple of years ago, and was very seriously ill, but sometimes it’s so mild as to be symptom-free, or virtually symptom-free, and in those cases the Centers for Disease Control recommends doing nothing but paying close attention. (The treatment is semi-nasty, and different from the one for Lyme.) Anyway, my doctor decided that I probably have Lyme, too, even though it hadn’t shown up in the blood test yet—you can get a full banquet of tick diseases from a single bite—and that I should complete my three-week course of Doxycycline. That means playing golf in long sleeves, long pants, a huge hat, and lots of sunscreen, because Doxycycline makes your skin extremely sensitive to the sun. In fact, Gene’s daughter once went skiing while taking it, and high-altitude solar exposure caused the whites of her eyes to temporarily turn brown.
On the other hand, I’ve had four of my best rounds of the year since I started taking the pills.